My best paying employable skill sets are comprised of writing, marketing, research and social/multi media. All of which rely heavily on computers, reading and sitting.
The activities which promote my worst states of physical health are comprised of reading, writing, and researching while employing the use of computers. This also tends to demand time sitting or standing in limited, painful positions.
I am in less pain, and at the most ease of my disease when not required to to do any of the above. I also find tremendous discomfort and get "lit up" with pain and migraines when I have scheduled appointments, meetings and commitments (some of which solely require me to 'show up' and just physically 'be' there).
Diabolical, this disease.
While I am regularly working on controlling the "flare" factors, that contribute to the reasons why I may go from a good day to a bad, I am far from functioning at a normal level. The tools required to manage your pain from the psyche are so valuable but impossible to master without constant practice. You really have to recreate how one associates personal experience to physical reaction. Meditation, biofeedback, writing in journals, diet, exercise, yoga, stress management etc., are such obvious answers and tools we have acquired from different cultures and eras over thousands of years. They truly are inherent gifts from "God and Earth" for us to utilize, to grow spirituality, emotionally, intellectually and physically. But you would be surprised how little people use these in their daily lives. I certainly have dabbled in many of these practices, primarily in my early twenties. But I got lost in the chase, and learned to thrive with stressors controlling and dictating my life.
My diet was never poor, I definitely liked to drink, but I was always mindful of the food I ate, cooking for years now and making seemingly intelligent choices at the time. Regardless, whatever the CAUSE of the Fibromyalgia, I have it.
Now its trying to manage my disease with eastern (and western, of course) and ancient practices while trying to function independently in a modern world, primarily with my modern skills. This is a balance I have yet to find.
Mind over Matter...Food as Medicine...Getting out of the DIS and back to the EASE...
Ugh. Its easier said than done.
An honest depiction of life after the diagnosis
- Jilly
- This is a very personal record of my journey into the world of Chronic Illness and Disease. I was diagnosed with Fibromyalgia at 31. In the course of 6 weeks following my diagnosis, I lost my job, my independence and my ability to live a life without limits. It is my hope this blog will provide some comfort for many of you suffering from this disease. I'm not the "Golden Girl" for Fibro. I'm not that strong. I simply look forward to honestly sharing the peaks and valleys of my journey with anyone willing to listen.
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Disclaimer
I am not a medical professional and this blog is not intended to be received as giving medical advice. I simply am documenting my personal experiences living with Fibromyalgia. It is for entertainment and informational purposes only.
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