I find myself in constant contradiction with myself.
I am a walking hyprocrisy. If that can even be a thing. Well tonight it is, so just go with it.
On my blog's subtitle I state one thing, and I am damn adamant about it. "I am not the Golden Girl" of this disease. I like to think of myself as the polar of golden, something poopy colored, thats dull, unattractive, worthless and frankly, you're probably a wasting of your time reading any of this.
I know nothing. Nada. I am so clueless about this disease, and what works and doesn't, I am literally losing my mind.
For example, just last week I wholeheartedly supported the notion to " get off the pharms" and "letting the toxins out" by doing so. I sill 100% believe that's the route for the strong types. The fibro sufferers tougher than ME's out there. The Fibros who obviously don't have additional issues causing them a terribly miserable existence. I should be one of those strong types. But I am not. I am like a little helpless kitten, sulking and depressed, staring at the bowl of milk desperate to jump in and soak it up for a warm and fuzzy feeling, a good night sleep, a satisfied belly.
You know, if that milk is vicodin, or percocet and ambien, and flexeril. Maybe throw a clonazepam in there to simply numb my brain so I am not reminded of how absolutely terrible I feel.
So, today I feel it's my responsibility to note one thing: I WANT DRUGS! But, it is also important to state I did not refill my scripts, which I could have. I want to. But I didn't. I thought about, a lot. But instead, I am here, with my head perched on my pillow, fighting a migraine, my left leg almost totally numb, my back and neck in so much pain I have envisioned offing myself a handful of times this day.
But hey, those drugs, for me and speaking only for myself, simply mask what is going on. And masking is important some days-like for instance when I want to enjoy myself or a day with my husband, family or friends, when the misery comes upon me. But right now, I am taking comfort in the fact I am ok being miserable tonight.
And I am testing out the Paleo Diet, with extra massive heaping amounts of veggies (kales, chards, green and lots of berries!!) to see if my pain will dissipate. I am in week 3ish maybe 4, interrupted by some cheating-so lets subtract a week, lol.
At firs I thought it was working. But in all honesty, I have looked back on this last month and I have been laid up more days than healthy. I guess that's part of the process at the beginning stages of learning how to build your body back up after the initial severe fms diagnosis.
But I would think after 10/11 months I would be better.
My friends and family say I am light years better. And I appreciate that, I do. But I think a lot of what they see is I am not in the haze of all the drugs I was over prescribed at first. I can count all 12 fingers now (jk).
This was my ramble. I plan to make this a useful blog eventually. I have some topics and experiments I am going to bring public shortly--that I am doing with myself and my body and plan to blog about extensively. I just haven't decided truly how honest and public I want to get.
In the end this blog is here for one reason and that's to bring all fms issues to light-because it's is soooooooooo much more than just pain. Like light years more. If it were just pain, I would be popping pain killers and living my life, dulling it.
I mean, wouldn't you all?
An honest depiction of life after the diagnosis
- Jilly
- This is a very personal record of my journey into the world of Chronic Illness and Disease. I was diagnosed with Fibromyalgia at 31. In the course of 6 weeks following my diagnosis, I lost my job, my independence and my ability to live a life without limits. It is my hope this blog will provide some comfort for many of you suffering from this disease. I'm not the "Golden Girl" for Fibro. I'm not that strong. I simply look forward to honestly sharing the peaks and valleys of my journey with anyone willing to listen.
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These are my words, my thoughts, and my feelings. Publishing these on any source other than this site is prohibited. You may make reference to content found in this blog by marking it's source, linking to this web address, and quoting the content accurately. Thanks!
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I am not a medical professional and this blog is not intended to be received as giving medical advice. I simply am documenting my personal experiences living with Fibromyalgia. It is for entertainment and informational purposes only.
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