After four months, now into my fifth of waiting for a response from the SSA, I finally received some information regarding my status regarding my disability application. That being: they want more tests. More tests? I see a physician nearly every 14 days, get body therapy weekly, and was in to three doctors within the first 10 days of December for agonizing pain, medication withdrawal (effexor/cymbalta), migraines and well...fibro.
I googled why I would be subject to yet another exam-my medical history has been documented for two years now, with near weekly documentation by over 5 medical offices, and more than five specialists since March 2011.
I came upon this blog, that many of you may find helpful if applying for this sort of thing: http://disabilityblogger.blogspot.com/2008/05/social-security-disability.html
On this link above, he says, and I quote him:
"If you file for social security disability or SSI disability, there is always the chance that, during the processing of your claim, you may be sent to what is known as a consultative examination. Consultative exams are scheduled in two basic types of scenarios: A) When a claimant has not been seen by a treatment specialist (this could be a physician or psychiatrist) for an appreciable amount of time or B) when a claimant has a condition for which he or she does not seem to have any medical record documentation. " (source: http://disabilityblogger.blogspot.com/2008/05/social-security-disability.html).
That all makes plenty of sense. But I am neither of those cases. I am completely docmented, physician frequented, seen by a treatment specialist: PSYCHIATRIST (Dec 15 was my most recent apt) and I have so many medical records pertaining to this issue, I am certain and saddened that I likely am cause for the depletion of a Costan Rican rainforest.
I just completely lost my train of thought. But I find it strange my very recent records are not enough.
So I have a mental exam ahead, which they so graciously appointed me for Valentine's Day, at practically 5pm about an hour from my house.
I completely support the protocol of these tests etc. But I am going on 5 months with ZERO income since I applied, and come May I will be at one year without any form of pay for myself. I am so blessed and fortunate to have my husband work 16 hour days to support us, and pay off our tremendous medical bills and debt, and to have the most generous parents pay for a huge amount of the recent medical bills, and let us live here rent free.
This process needs to speed up. I know I am the 1% of truly blessed and fortunate disableds out there who have somewhere to go, someone to rely on. I can't imagine what the rest go through.
Maybe this is where I need to rethink how this disease entered my life for a reason. Maybe I can figure out a way to get financial support for people who are permanently effed like me with no resources. In time. I still can't do a task for longer than 15 minutes at a time without massive pain/migraines/muscle tension/misery.
Curious if anyone out there has gone through this mental test. I will comment more after the reviews. I don't need to jinx myself.
An honest depiction of life after the diagnosis
- Jilly
- This is a very personal record of my journey into the world of Chronic Illness and Disease. I was diagnosed with Fibromyalgia at 31. In the course of 6 weeks following my diagnosis, I lost my job, my independence and my ability to live a life without limits. It is my hope this blog will provide some comfort for many of you suffering from this disease. I'm not the "Golden Girl" for Fibro. I'm not that strong. I simply look forward to honestly sharing the peaks and valleys of my journey with anyone willing to listen.
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I am not a medical professional and this blog is not intended to be received as giving medical advice. I simply am documenting my personal experiences living with Fibromyalgia. It is for entertainment and informational purposes only.
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